Our Mission Statement:

The goal of Liam's Fund is to purchase state-of-the-art equipment. Liam's Fund seeks to raise funds for sophisticated neurosurgical equipment that can reduce the number of surgeries performed and significantly increase the number of successful procedures for children who face the anguish of brain surgery.
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In Honor
Team Liam
Honored Teammates
This year's Honored Teammates for Team Liam are:
   - Joshua Andrews
   - Madison Eddings
   - Arnold Conrad Ellingson
   - Liam Gutierrez
   - Jordan Howard
   - Emma Rawlins
   - Brian Remas
   - Nick Sloan
   - Christina Tajyar
   - Michael
   - Natalie
In Memory
In Memory
Honored Teammates

Joshua Andrews    Back to Top
On 8/23/98, Joshua was born three months early. At three days old, he was diagnosed with Grade III bleed and hydrocephalus. He endured life in the NICU, received daily ventricular taps, until he reached three pounds, a safe weight for surgery.

Joshua has not only survived many more surgeries, a total of 30, he has thrived! He is pictured here with his sister. He and his best buddy, Alex, played baseball for the Miracle League first season. America's national pastime, didn't pass us by. Luckily one XL jersey was left, although it's to his knees, Padres #13 was one lucky fit.

Joshua has intense ocean blue eyes beaming with love and affection for his family- mama big sister awa and dada, as well as his family of surgeons, nurse practitioners, and therapists. Joshua like the desert tree with the same name has overcome much adversity. He is a survivor.
  Last Updated: June 2007

Madison Eddings   Back to Top
Madison was diagnosed with a Chiari Malformation and associated syringomyelia shortly before she turned 2 years old. She underwent a suboccipital decompression to treat her disorder and subsequently developed hydracephalus, thus requiring a VP shunt. Maddy has had approximately 15 operations up to this point, the majority of which have been shunt revisions.

Maddy is a very happy, energetic, stubborn, and resilient 3 year old girl. She has a 7 year old sister named Sydney who she loves very much. Madison and Sydney like to sing and dance together to Brittney Spears and Shania Twain. Madison loves to swing on her swing set, play dolls, and she absolutely loves to go to the beach -- no matter what time of year it is or how cold it may be! Madison also likes to collect medical supplies for her medical kit. She says she is going to be a doctor when she grows up!
  Last Updated: February 2002

 
            Arnold
Conrad Ellingson
   Back to Top
Born: 9/21/99
Arnold was born with congenital hydrocephalus and had his first shunt placed when he was 3 days old. At 4 months old, he had his first shunt failure, and required a shunt revision. Between that time and age 2 1/2, Arnold developed some cysts in his brain requiring more shunts and had many more shunt failures, bringing the total number of surgeries to 23 so far. We are happy to say that he just passed his "1-year-no-surgery-anniversary." Arnold has many other issues to deal with, like cerebral palsy (although it is expected he will eventually walk), visual impairment, seizure disorder, behavioral problems, and developmental delays in all areas. The good news is that we take each day as it comes, and Arnold makes slow but steady progress!
  Last Updated: November 2006

Liam Gutierrez   Back to Top
Liam was born with Hydrocephalus on November 10, 1998. During his first month of life, Liam had over 20 brain surgeries. By the age of 18 months, Liam has had over 75 brain surgeries. That averages to about 4 brain surgeries a month for a child who wasn't even 2 years old!
  Last Updated: March 2002

Jordan Howard   Back to Top
Jordan is a 6 year old with a Cerebral Astrocytoma. In 1998 at age 2yrs 10 months he had a crainotomy (brain surgery) to remove the mass that had grown since before birth along with a ventriclosomy to drain the excess fluid from his brain (hydrocephalous). The prognosis at the time of surgery was grim, but by the grace of God and the skill of our neurosurgeons he came out much better than expected. His mother is happy to say that he is 3 years, 8 months clean and the rest of the tumor that lives inside his brain has not grown.

Jordan loves to play soccer and will start his first year of Little League this Spring. He is a kindergartner with a great deal of love and promise.
  Last Updated: February 2002

Emma Rawlins   Back to Top
Emma was born on December 17, 2002, with hydrocephalus. She functioned so well at birth that her doctor postponed her first surgery from 2 days of age to 3 weeks of age so that Emma could establish feeding patterns. Between 3 weeks and 1 year of age, Emma had 5 neurosurgeries.

At 2 years old, Emma is thriving. Her favorite past-times are chasing her brother, coloring pictures, and reading books.
  Last Updated: March 2005

Brian Remas   Back to Top
Brian Remas has had eight different neurosurgical procedures to treat a life threatening condition. Currently, Brian plans to ride 100 miles in the Tour de Palm Springs Bike Ride on February 7, 2004.

Brian has a passion and is dedicated to help Children's Hospital and advance treatment for neurological threats or injuries. From his own treatments and surgeries, he has benefited from the latest advanced technology. Brian has even helped other patients by sparing them extra surgeries simply because the neurosurgeons had learned from treating him.

Brian began riding a bike with his dad to improve the strength on his right side. It is working. He is now riding to raise funds to advance the technology in the neurosurgical unit so that Children's can provide state-of-the-art care. His goal, either to achieve this year or next year or the year after or..., is an MRI machine in the surgical suite. His ultimate goal is to raise $1.2 million.

For more information on Brian's biking: http://www.bikeforbrains.com
  Last Updated: November 2003

Nick Sloan   Back to Top
Nick Sloan was diagnosed with a medullablastoma (malignant brain tumor) in October of 1998. After surgery, he went through six weeks of radiation and one year of chemotherapy. He finished treatment in December of 1999. He has been cancer free for two years.

He's in the 7th grade and on the honor roll. He loves to fish, kneeboard at the river, snow ski, and golf.

He also volunteers five hours a week at REINS Therapeutic Horsemanship Program.
  Last Updated: February 2002

Christina Tajyar   Back to Top
Christina Tajyar age 13 had 4 brain surgeries at age 11 for brain anurism, complex brain arteriovenous malformation, and arteriovenous malformation of the brain.

An arteriovenous malformation (AVM) is a congenital disorder characterized by a complex, tangled web of arteries and veins. An AVM may occur in the brain, brainstem, or spinal cord and is caused by abnormal development of blood vessels. The most common symptoms of AVM include hemorrhaging (bleeding), seizures, headaches, and neurological problems such as paralysis or loss of speech, memory, or vision.

Is there any treatment? There are three general forms of treatment for AVM: surgery; embolization, which involves closing off the vessels of the AVM by injecting glue into them (embolization is often used before surgery); and radiosurgery, which involves focusing radiation on the AVM.
  Last Updated: February 2002

Michael   Back to Top
Soon to be updated.
  Last Updated: May 2007

Natalie   Back to Top
On January 28, 2010 Natalie was struck in the right side of the back of her head with a hard, fast high-hit field hockey ball during a game. She suffered a depressed skull fracture and required surgery to "elevate her skull."

Dr. Michael Levy performed the surgery at Children's. A week later, she was back at school. She definitely knows she is a very lucky person. We are especially thankful that, because of the previous fundraising successes of Liam's Fund, the Neurosurgery Department had the tools and equipment needed to take care of her.

Natalie is in 7th grade. She is an excellent student, loves to play soccer and field hockey, and loves to be with her friends.
  Last Updated: March 2010

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